GeneWatch reports and briefings
Recent Articles
-
GeneWatch response to Academy of Medical Sciences review of research regulation
8th September 2010 -
in ReportsSummary & Conclusions: History of proposal for data-sharing without consent
26th January 2009A summary of the history of UK Biobank.
-
in MP BriefingsMPs Briefing: The Coroners and Justice Bill: A DNA database by stealth?
26th January 2009 -
in ReportsHistory of the proposal for data-sharing without consent
26th January 2009This report documents the history of the UK Biobank genetic research project. It forms Appendix A of the later 'Bioscience for Life?' report. It refers to proposals to share genetic and health data with private companies without consent: these proposals were dropped in 2009 following massive public opposition (read more here). However, data-sharing without consent could still take place using the NHS's secondary uses service (SUS) for electronic medical records.