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You are in Human Genetics → Genes and the NHS → Coroners and Justice Bill (Clause 152) → GeneWatch reports and briefings

GeneWatch reports and briefings

Recent Articles

• GeneWatch response to Academy of Medical Sciences review of research regulation
  8th September 2010

• in MP Briefings
  MPs Briefing: The Coroners and Justice Bill: A DNA database by stealth?
  26th January 2009

• in Reports
  History of the proposal for data-sharing without consent
  26th January 2009

  This report documents the history of the UK Biobank genetic research project. It forms Appendix A of the later 'Bioscience for Life?' report. It refers to proposals to share genetic and health data with private companies without consent: these proposals were dropped in 2009 following massive public opposition (read more here). However, data-sharing without consent could still take place using the NHS's secondary uses service (SUS) for electronic medical records.

• in Reports
  Summary & Conclusions: History of proposal for data-sharing without consent
  26th January 2009

  A summary of the history of UK Biobank.

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