GeneWatch UK's Aims and Principles
GeneWatch UK is a not-for-profit policy research and public interest group. We investigate how genetic science and technologies will impact on our food, health, agriculture, environment and society. These aims and principles explain why GeneWatch exists and what we are trying to achieve.
Our principles
Genetic science and technologies are being promoted as the solution to problems as diverse as hunger, crime, climate change and cancer. GeneWatch UK believes that:
- An over-emphasis on genetic explanations and solutions to these problems can mean that underlying social, economic and environmental issues are ignored;
- Commitments to particular assumptions about science, technology, nature and society are often made behind closed doors, with insufficient public scrutiny;
- Consideration of the impacts of genetic technologies on the environment, health, animal welfare and human rights should be at the heart of decision-making.
Our aims
GeneWatch UK's aims are to:
- ensure that genetic technologies are developed and used in the public interest and in a way which protects human health and the environment and respects human rights and the interests of animals;
- promote public involvement in the decisions that are made about science and about whether or how genetic technologies are used;
- increase public understanding of genetic science and technologies;
- carry out or support research about their impacts.
What we want to achieve
GeneWatch UK is working to increase public understanding of genetic technologies and to secure public, academic, media, investor, regulatory, parliamentary, local, national and international governments' support for a comprehensive programme to ensure genetic technologies are developed and used in an ethical and safe manner. This includes:
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Improving public understanding, accountability and participation in decision making
- A balanced independent and open scientific research agenda.
- Effective public involvement in the decisions about whether and when genetic technologies should be applied.
- Systems to ensure people can exercise choice about whether to eat GM foods.
Protecting people, the environment and animals
- Protection of plants and animals from contamination by GMOs.
- The biotechnology industry to be held liable for environmental or economic damage caused through the use of GMOs.
- A ban on the patenting of genes, plants and animals to prevent their monopolisation compromising human rights and food security.
- Equity for people in developing countries in access to the benefits of genetic technologies and protection from genetic exploitation.
- A presumption against the genetic modification and cloning of all animals, both of which can lead to considerable animal suffering, and which should only be allowed if it will contribute significantly to the relief of serious human suffering and there is an absence of more acceptable alternatives.
- Effective national and international laws preventing biological weapons development because genetic engineering is seen as a way of improving the potential for their use and increasing the threat of their development.
- Protecting human rights and dignity
- Laws to prevent the misuse of genetic information including a ban on the use of genetic test data by insurers and employers.
- A guarantee of genetic privacy and the right of people to refuse to undergo genetic testing.
- Independent regulation of genetic testing and genetic databases.
- A ban on human reproductive cloning and human genetic modification.
- Promoting positive, safer alternatives
- Recognition that tackling lifestyle, social, economic and environmental health factors are often more important than genetics in preventing disease.
- Recognition that providing a healthy diet and establishing food security requires social, economic and political solutions and will not be achieved through technological interventions alone.
How we work
GeneWatch UK works by:
- Researching and analysing new developments in genetics and how they will affect people, the environment and animals.
- Clarifying and making accessible to the public, the emerging science of genetics and its implications.
- Communicating the issues to decision makers, the public, media and other organisations affected by genetics, such as farmers, doctors and businesses.
- Advocating and justifying practical measures to protect against adverse impacts of genetic technologies on people, the environment and animals.
- Intervening where most effective to see that adequate safeguards are introduced.
- Networking and alliance-building with a wide variety of organisations and individuals interested in human, environmental and animal health and welfare.
- Challenging the biotechnology industry and others if they produce misleading information.
How is GeneWatch UK funded?
Most of GeneWatch's funds for research and education projects come from charitable trusts. A smaller amount comes from undertaking commissioned work usually, but not exclusively, for other groups in the voluntary sector who need our specialist knowledge. The remainder of GeneWatch's income comes from donations.
GeneWatch UK staff
Dr Helen Wallace - Executive Director
Helen joined GeneWatch as Deputy Director in 2001, specialising in the ethics, risks and social implications of human genetics. She became Director in 2007. She has published extensively on issues associated with genetic science and technologies; given expert evidence to numerous parliamentary committees and the the European Court of Human Rights; and is quoted widely in the press and media. Previously, Helen worked as an environmental scientist in academia and industry and as Senior Scientist at Greenpeace UK, where she was responsible for science and policy work on a range of issues. She has a degree in physics from Bristol University and a PhD in applied mathematics from Exeter University.
Dr Eva Sirinathsinghji
Eva joined GeneWatch UK in 2020, as Policy Officer (Human Genetics). She holds a PhD in Neurogenetics from King's College, University of London, where her work involved the use of genetic engineering techniques for biomedical research purposes. Since completion in 2011, she has researched the biosafety considerations as well as the wider social concerns of genetically modified organisms, working with various civil society organisations across the world. She a member of the The Ad Hoc Technical Expert Group on Risk Assessment and Risk Management at the UN's Convention on Biological Diversity, representing Third World Network.
Topics
- A DNA database in the NHS?
Read the GeneWatch UK's briefing The Generation Study: Is genome sequencing good for babies?
Read the Guardian article "'Race science' group say they accessed sensitive UK health data".
Read the 2013 GeneWatch UK report about previous Government plans to share NHS medical records and genetic information from every patient with companies like Google.
Visit GeneWatch's website, My DNA, My Family, My Rights.
For more information on sharing of NHS medical records, visit Medconfidential.
- GM trees
Read the GeneWatch report GM Trees: Can We, Should We?.
The American Chestnut Foundation has announced that it is discontinuing development of the GM American Chestnut tree called 'Darling 58'. The US Department of Agriculture (USDA) has previously consulted on plans to release these GM trees into forests in the USA. Read GeneWatch UK's submission to the USDA consultation.
- GM Crops and Food
Read the report, published by Third World Network in collaboration with GeneWatch UK, 'Bt Crops Past Their Sell-By Date: A Failing Technology Searching for New Markets?
Read the GeneWatch UK Report, Time for the end of GM/GE herbicide tolerant crops?. The summary and a low-resolution full report can be downloaded separately.
- Genes and Health
Read GeneWatch UK's report Polygenic risk predictions: health revolution or going round in circles?.
Listen to BBC Radio 4's The Screening Dilemma and read the article.
Read the expert warning about genetic screening programmes.
- New Genetic Engineering Techniques
The UK Government is deregulating some gene edited organisms (plants and animals) in England. Visit our Genetic Technologies (Precision Breeding) Bill webpage. The Act was adopted with minor amendments in March 2023, but it requires secondary legislation that will now determine important details such as the extent of risk assessments and labelling that will be required, and how animal welfare will be assessed.
GeneWatch UK's response to the Food Standards Agency (FSA) consultation is here. Our response to the Government's earlier consultation is here.
GeneWatch UK has published a briefing on problems with DNA repair during the gene editing process.
- Data Protection and Digital Information Bill
This Bill has now been dropped, due to the UK election. Although it is no longer going to become law, the Bill highlights how easy it is for governments to remove the safeguards that currently apply to people's genetic information.
- Genes and Marketing
Visit GeneWatch's website, My DNA, My Family, My Rights.
- GM insects
In May 2023, Oxitec withdrew its application to release GM mosquitoes in California. The UK-based company Oxitec, owned by Intrexon, had applied to release a second generation of its GM mosquitoes in Florida and California. Read GeneWatch UK's submissions to the US Environmental Protection Agency (EPA) here and here.
A scientific paper reports that genes from Oxitec's GM mosquitoes, released in experiments in Brazil, have spread into the wild population of mosquitoes. See also the reports in the Cayman Compass and Yale News.>
- International DNA databases
Vist GeneWatch's new website, My DNA, My Family, My Rights.
Corporations selling DNA-profiling technology are aiding human-rights abuses: read the article in Nature.
Read the report by the Forensic Genetics Policy Initiative: Establishing Best Practice for DNA databases. This report was developed using an innovative consultative approach. The final report reflects input from civil society groups around the world from a human rights perspective.
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