Articles and other external links
Recent Articles
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Caulfield et al (2014) A review of the key issues associated with the commercialization of biobanks
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This scientific paper looks at how data from twins and families is analysed. It concludes that the usual method is likely to exaggerate the importance of genetic differences in common diseases such as cancer. Breast cancer, for example, could often run in families because family members are exposed to the same environmental or lifestyle factors, rather than because relatives share some of their genes. If so, expensive research studies may be looking for "susceptibility genes" which do not exist or will be impossible to find.
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in ArticlesThe development of UK Biobank: Excluding scientific controversy from ethical debate
Abstract of an article by GeneWatch's Helen Wallace in the journal Critical Public Health. Please contact us if you would like a reprint of the article.
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In May 2005, the Medical Research Council (MRC) finally published the peer reviewers' comments on the biobank's 2002 scientific protocol, following a Freedom of Information (FOI) request by GeneWatch UK. Many of the reviewers questioned the statistical basis of the project.
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in ArticlesOpenDemocracy: A UK Biobank: Good for Public Health?
23rd July 2003Article by GeneWatch's Dr Helen Wallace as part of the OpenDemocracy online debate on "Genes and Ownership".
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The House of Commons Science and Technology Committee questioned the Medical Research Council about UK Biobank and criticised the project as "politically driven". The Committee recommended that the peer reviewers' comments should be published anonymously "to build confidence that the project is fully justified and supported by the scientific community".
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